So, I'm super sad. I have tried so many times to upload some of the CUTEST pictures and they just won't work! Has anyone ever had this happen before? I guess I am going to have to try a few more times and then maybe I will have to start a new blog or something if it doesn't work? If you have any advice... please let me know! I want it to work!
Just over a week ago, Gage and I headed up to Salt Lake for some appointments he had at PCMC. We left early Monday morning so we could get to Emily's house for a get-together! Of course, this is one of the things I wanted to post pictures of because this was about the cutest bunch of kids I have ever seen! If you look on Emily's blog, she posted pictures of it all! It was so much fun, thanks again for the great times everyone that was there! And especially Emily for having us over. I can't wait for next time!
Another kodak moment I have some adorable pictures from is the sleep study that night. Last time we had a sleep study, Gage was soooo good. The nurses kept complimenting him and were loving it! So this time... I was worried. I know Gage sure has grown up since then and knows what he likes... and DOESN'T like! I was more than pleased when he acted like an angel again! Yes, he was trying to crawl all over the bed as they were sticking all the annoying things on him, but he wasn't fussing or crying or getting angry at all! The first half of the night, they had the room quite warm, so Gage didn't sleep very well. Once I had them cool it off, the rest of the night was alright... I guess as good as it could be during a sleep study! All those annoying wires, I don't think I would cooperate as well as he did! We are still waiting on the results though, hopefully we will get those at the beginning of next week.
The next morning, they woke us up bright and early. We stayed at the hospital since we had a cardiology appointment just an hour later. Gage had to get sedated for his echo, and it was a pain, as usual, for then to get in the IV. Poor kid! I must say, I HATE holding Gage and watching him as he is sedated. I really never want to watch that again, it was so hard for me. After the echo, we were heading up to recovery and Gage was SO out of it, but still tried waving to all the nurses as we walked past. It was so cute, he is such a flirt! Recovery went smoothly, so we only had to wait an hour before we went to wait for the doctor. We ended up waiting quite a while for him... only to get the news I didn't want to hear. It ended up being a really hard day for me. You know how we kept Gage on oxygen 24/7 for 6 months? Well, that was to try to get rid of the pulmonary hypertension. When the doctor came in, I was really scared because I was afraid of the news he could give me. Unfortunately, Gage's pressures are the exact same as they were way back in March. No change at all. Not even ONE number less. So the doctor and I had a heart to heart about our options. Derek and I had decided already that we are done with oxygen. Gage is so much happier without it, and so are we. It felt good when the doctor agreed with me and told he would have made the same decision. Please keep Gage in your prayers, I know that even though the doctor doesn't think his heart is going to get better, Heavenly Father has his own plan! I sure hope we get good news in January, when we got back again for another appointment. Sorry for the sobs, I just know that some of you have been wondering about how it went. Thanks so much for all your support and good wishes.
Last weekend, we got to go to St. George to hang out with our family. My brother and sister-in-law were down from up north and it was great to see them! And even better to hear their good news, I finally get to be an AUNT! I am so excited for them, they are going to be such great parents. We love you guys and can't wait to meet the baby! :)
On Tuesday, Gage's occupational therapist came over. It was just the second time he has come. The first time, he was doing an evaluation to see where Gage was at. As he had Gage do different activities, he kept asking me for different things to try. I kept thinking it was weird that he didn't come with the things he needed, but eventually he told me he just didn't bring a lot of the things because he didn't expect Gage to get as far into the "test" at his age as he did! I was so proud of him, he really is doing so well. But the other day when the OT came again, Gage wasn't too excited to cooperate, I guess that is the way it goes! Come to find out, he was getting a fever and has been sick the past few days, so I don't blame him. We took him to the doctor today and it looks like something viral, so hopefully he will get over it soon!
Gage picked up a new sign today, he says "more"! I love the way he personalizes each of his signs. I will have to get them on video and upload them (yeah... if I could ever get it to work!!). He signs "more" "dog" and "alligator". He also says a few words vocally... but no, it isn't mommy and daddy. He says "kitty" and "Jesus". It is too cute. Eventually he will say mom, right?! haha He also broke his 9th tooth today, poor kid! Maybe that plays a part in why he hasn't been feeling good.
So one last thing before I end this forever long post with no cute pictures added! Tomorrow is a big day for our family, we find out where we are going to end up next year after graduation! I am so proud of Derek and all the hard work he has put in these past few months while recruiting has been going on. He has had more interviews than anyone I know of, so I think that says a LOT! I couldn't be more proud of him! I love you babe!
Just over a week ago, Gage and I headed up to Salt Lake for some appointments he had at PCMC. We left early Monday morning so we could get to Emily's house for a get-together! Of course, this is one of the things I wanted to post pictures of because this was about the cutest bunch of kids I have ever seen! If you look on Emily's blog, she posted pictures of it all! It was so much fun, thanks again for the great times everyone that was there! And especially Emily for having us over. I can't wait for next time!
Another kodak moment I have some adorable pictures from is the sleep study that night. Last time we had a sleep study, Gage was soooo good. The nurses kept complimenting him and were loving it! So this time... I was worried. I know Gage sure has grown up since then and knows what he likes... and DOESN'T like! I was more than pleased when he acted like an angel again! Yes, he was trying to crawl all over the bed as they were sticking all the annoying things on him, but he wasn't fussing or crying or getting angry at all! The first half of the night, they had the room quite warm, so Gage didn't sleep very well. Once I had them cool it off, the rest of the night was alright... I guess as good as it could be during a sleep study! All those annoying wires, I don't think I would cooperate as well as he did! We are still waiting on the results though, hopefully we will get those at the beginning of next week.
The next morning, they woke us up bright and early. We stayed at the hospital since we had a cardiology appointment just an hour later. Gage had to get sedated for his echo, and it was a pain, as usual, for then to get in the IV. Poor kid! I must say, I HATE holding Gage and watching him as he is sedated. I really never want to watch that again, it was so hard for me. After the echo, we were heading up to recovery and Gage was SO out of it, but still tried waving to all the nurses as we walked past. It was so cute, he is such a flirt! Recovery went smoothly, so we only had to wait an hour before we went to wait for the doctor. We ended up waiting quite a while for him... only to get the news I didn't want to hear. It ended up being a really hard day for me. You know how we kept Gage on oxygen 24/7 for 6 months? Well, that was to try to get rid of the pulmonary hypertension. When the doctor came in, I was really scared because I was afraid of the news he could give me. Unfortunately, Gage's pressures are the exact same as they were way back in March. No change at all. Not even ONE number less. So the doctor and I had a heart to heart about our options. Derek and I had decided already that we are done with oxygen. Gage is so much happier without it, and so are we. It felt good when the doctor agreed with me and told he would have made the same decision. Please keep Gage in your prayers, I know that even though the doctor doesn't think his heart is going to get better, Heavenly Father has his own plan! I sure hope we get good news in January, when we got back again for another appointment. Sorry for the sobs, I just know that some of you have been wondering about how it went. Thanks so much for all your support and good wishes.
Last weekend, we got to go to St. George to hang out with our family. My brother and sister-in-law were down from up north and it was great to see them! And even better to hear their good news, I finally get to be an AUNT! I am so excited for them, they are going to be such great parents. We love you guys and can't wait to meet the baby! :)
On Tuesday, Gage's occupational therapist came over. It was just the second time he has come. The first time, he was doing an evaluation to see where Gage was at. As he had Gage do different activities, he kept asking me for different things to try. I kept thinking it was weird that he didn't come with the things he needed, but eventually he told me he just didn't bring a lot of the things because he didn't expect Gage to get as far into the "test" at his age as he did! I was so proud of him, he really is doing so well. But the other day when the OT came again, Gage wasn't too excited to cooperate, I guess that is the way it goes! Come to find out, he was getting a fever and has been sick the past few days, so I don't blame him. We took him to the doctor today and it looks like something viral, so hopefully he will get over it soon!
Gage picked up a new sign today, he says "more"! I love the way he personalizes each of his signs. I will have to get them on video and upload them (yeah... if I could ever get it to work!!). He signs "more" "dog" and "alligator". He also says a few words vocally... but no, it isn't mommy and daddy. He says "kitty" and "Jesus". It is too cute. Eventually he will say mom, right?! haha He also broke his 9th tooth today, poor kid! Maybe that plays a part in why he hasn't been feeling good.
So one last thing before I end this forever long post with no cute pictures added! Tomorrow is a big day for our family, we find out where we are going to end up next year after graduation! I am so proud of Derek and all the hard work he has put in these past few months while recruiting has been going on. He has had more interviews than anyone I know of, so I think that says a LOT! I couldn't be more proud of him! I love you babe!
